Proposals should address all the following:

• Design, develop and deploy, a pilot ECPDC information portal to complement the existing Knowledge Centre on Cancer (KCC). The knowledge base of the information portal will cover the cancer patient journey from diagnosis to life after cancer. It will provide evidence-based information on diagnosis, treatment options (including side-effects and late-effects of treatments such as fatigue, chronic pain, fertility, psychological and other health issues), rehabilitation, management of recurrence and palliative care.
• The information to include in the knowledge base, complements information provided through the KCC, adding to it and expanding its contents. Attention should be given also onto those cancers with a 5-year overall survival less than 50% from time of diagnosis and as well as to those relevant to paediatric cancers. It relies on scientific evidence and European, international or, where relevant, national guidelines.
• The selection of the information provided to the users should be based on explicit and robust criteria and be transparent.
• Provide a validated workflow for reviewing, selecting and timely updating the knowledge base when new clinical information and scientific evidence arise. The development and implementation of human centric AI-based tools may facilitate the reviewing, selecting and updating process.
• An AI-based virtual assistant is implemented in the portal to interact with users and improve their experience by delivering information tailored to user cultural background, individual (clinical) circumstances, needs, preferences and/or expectations. This virtual assistant should be designed and tested in real-world patient populations for acceptability and value provided. Language should be non-technical and using lay terms.
• All the developed IT-solutions and workflows should be open source and made available. The involvement of AI-researchers, clinicians, epidemiologists, guideline developers, service design specialists and patient organisation representatives are envisaged.
• The pilot ECPDC information portal should also include other information that may be relevant to cancer patients and survivors and their families such as options to cross-border health care, participation to clinical research, psychosocial and legal support options, guidance and support for returning to study or to work, financial issues and survivors’ rights.
• To ensure an efficient and useful digital platform for patients, the pilot ECPDC information portal should be tested and validated by an appropriate number of cancer patients and survivors of different cancer types and age groups. Solutions to identified challenges should be provided and implemented. The action will also identify gaps in information relevant to patients and inform policy decisions.
• A feasibility assessment of linking the pilot ECPDC information portal to the Knowledge Centre on Cancer, including operational solutions and sustainability, should be provided.
• Regular monitoring, supervision and evaluation by KPIs should be conducted in order to ensure patient benefit.