Supporting patients’ access to their health data in the context of healthcare services for citizens across the EU

Closed

Programme Category

EU Competitive Programmes

Programme Name

Digital Europe Programme

Programme Description

Digital Europe Programme is the first EU programme that aims to accelerate the recovery and drive the digital transformation of Europe.

Worth €7.6 billion (in current prices), the Programme is a part of the next long-term EU budget, (the Multiannual Financial Framework), and it covers 2021 to 2027. It will provide funding for projects in five crucial areas: supercomputing, artificial intelligence, cybersecurity, advanced digital skills, and ensuring the wide use of digital technologies across the economy and society.

The Programme is fine-tuned to fill the gap between the research of digital technologies and their deployment, and to bring the results of research to the market – for the benefit of Europe’s citizens and businesses, and in particular SMEs. Investments under the Digital Europe programme supports the Union’s twin objectives of a green transition and digital transformation and strengthens the Union’s resilience and strategic autonomy.

Programme Details

Identifier Code

DIGITAL-2024-CLOUD-AI-06-HEALTHACCESS

Call

Supporting patients’ access to their health data in the context of healthcare services for citizens across the EU

Summary

The action will enable patients to access their health data in the context of healthcare provision for individual citizens (i.e., ‘primary use’ of health data) thus contributing to reaching the digital target of 100% of EU citizens having access to electronic health records by 2030 as set by the Digital Decade Policy Programme. It will scale up and leverage the results from existing projects, frameworks and technologies, such as the services implemented in the ‘MyHealth@EU’ infrastructure supported under EU4Health, the European Electronic Health Record Exchange Format (EEHRxF), the EU Digital Covid Certificate (EU DCC), or the EU Digital Identity Wallet.

Detailed Call Description

Proposal(s) under this action should expand the geographical coverage of the services offered through MyHealth@EU allowing patients’ access to their consolidated health data and cross-border health data exchanges.

The outcomes of projects launched under EU4Health, Digital Europe and Horizon Europe programmes should be used and leveraged to accelerate the uptake of patient-mediated services in MyHealth@EU.

The awarded proposal(s) will have to review and map the work performed under other EU-funded actions and projects in the field of eID for health, in particular those enabling digital identification and access of patients to their health data, such as the POTENTIAL project that is piloting the EU Digital Identity Wallet for claiming ePrescriptions.

The solution that awarded proposal(s) will deploy should ensure ubiquitous access, i.e. a mobile-first approach should be favoured. In addition, the solution should be designed with accessibility in mind, to ensure equal access to health data. Patients should be able to view and consult their health data in their country and abroad, potentially use online services, control, and allow access to their health data and carry out transactions through the online healthcare system. The solution is to enable patients to access priority categories of data as proposed in the EHDS, i.e. patient summaries, ePrescriptions, hospital discharge reports, images and imaging reports, and laboratory results.

To test this solution, the action should engage with relevant user communities, including cancer patients, survivors and their families, persons with different disabilities, older people, and should seek their feedback.

Overall, the proposal(s) under this action are expected to cover the following tasks:

  • Review and Map Projects: Evaluate and chart relevant ongoing projects for standards tech methods of electronic identification of patients and digital solutions for MyHealth@EU development.
  • Design Consolidated Patient Solution: Create a unified patient data access solution, building on past projects, for cross-border use regardless of Member State, aligning with EEHRxF and collaboration with NCPeHs and patients.
  • Deploy NCPeH and MyHealth@EU: Establish NCPeHs and MyHealth@EU services for cross-border health data exchange, enhancing data consolidation.
  • Scale Solution: Roll out the solution widely in healthcare settings, linking to MyHealth@EU’s NCPeHs, including user-facing features and backend APIs.
  • Test Patient Access Acceptance: Collaboratively assess patient access via MyHealth@EU, working closely with NCPeHs and stakeholders, reporting on user experience, especially in cancer-related domains.
  • Engage Users and Assess Implications: Involve users and stakeholders in design, assessing ethical, legal, and societal impacts during technical deployment.

The solution should cover a large number of Member States.

Call Total Budget

€10.000.000

Financing percentage by EU or other bodies / Level of Subsidy or Loan

50%

Maximum grant amount per project: €10.000.000

Thematic Categories

  • Health
  • Information Technology
  • Research, Technological Development and Innovation

Eligibility for Participation

  • Legal Entities
  • Local Authorities
  • NGOs
  • Non Profit Organisations
  • Other Beneficiaries
  • Private Bodies
  • Semi-governmental organisations
  • Small and Medium Enterprises (SMEs)
  • State-owned Enterprises

Eligibility For Participation Notes

In order to be eligible, the applicants (beneficiaries and affiliated entities) must:

  • be legal entities (public or private bodies)
  • be established in one of the eligible countries, i.e.:
    • EU Member States (including overseas countries and territories (OCTs))
    • non-EU countries:

Targeted stakeholders: The consortium can include public and private entities such as (but not limited to): public administrations and Member State authorities (e.g. national contact points for eHealth, digital health authorities), hospitals, medical centres, end-users (such as patients’ and healthcare professionals’ organisations), not-for-profit organisations, industry, SMEs.

Consortium composition – Proposals must be submitted by:
minimum 5 independent applicants (beneficiaries; not affiliated entities) from 5 different eligible countries.

Call Opening Date

29/02/2024

Call Closing Date

29/05/2024

National Contact Point(s)

Ministry of Research, Innovation and Digital Policy
Directorate of Research and Innovation
Eleana Gabriel
Telephone: +357 22 691918
Email: egabriel@dmrid.gov.cy

EU Contact Point

For help related to this call, please visit the following link: Write to us | European Union (europa.eu)